Off Topic…I need your help! Please!

But please help…

I work in a secondary school in Essex, England. I have done so in this particular school for over five years now.

Recently, one of our girls was diagnosed with brain tumour, located on her brain stem.

Lily is a warrior, she is fighting to battle this terrible condition.

Unfortunately, treatment in the UK for this particular type of cancer isn’t available. Lily’s best chance of managing and beating this tumour is in the US. This is going to cost the family a lot to get Lily there.

Our local community is fund raising like crazy, cake sales, raffles, sponsored swims, head shaves, quiz nights… to name just a few of the events people are participating in to raise money.

Lily has a friend Lillie. Lillie had a idea, if a Facebook group could get 300,000 people as members and all donated just one pound. That in itself will get Lily to America.

Please help Lily.

Even just sharing this post so we can reach further afield.

Lily’s Facebook Page

Lily’s GoFundMe Page

Facebook Group for the One Pound Warriors.

A message from Lily’s Mum.

🌻 Lilys friend also Lille, set this page up as an online fundraiser. It’s gone crazy which is amazing. Lots of questions of authenticity which is fine and I hope this clears eveything up. If not please ask me, I’m her mum.

🌻 Who is Lily? Lily is my daughter, she’s 14, she is from Eastwood in Essex. She has an inoperable brain tumour called DIPG.

🌻 Why fundraise? Lily cannot have treatment here in the UK as there isn’t any. Nope none!! Shocking but, true. The US have two clinical trials that sound promising for her cancer. Trials and private medical expenses in the US are not affordable on the adverage UK household income.

🌻 To follow Lilys journey please like her page Lily’s battle with Brain Cancer

🌻 We are not a registered charity, you cannot register a charity on an individual fundraising basis. We do have a registered charity supporting us, taking donations for those who need a charity number if you need it let me know.

🌻 This is an online fundraiser, we have a go fund me page, however the minimum donation is £5. Being that Lily’s friend Lillie wanted everyone to donate a pound we have added PayPal and bank transfer details.

🌻 We will be keeping you up to date with fundraising amounts and how it’s being used.

🌻 if you want to donate now instead of waiting till we reach 300,000 people then feel free using the methods below.

🌻 The money was originally going towards a trial called ONC201, this is a drug that suppresses the cancer and shrinks the tumour. It’s $150,000 deposit, then flights, returning to the US every 21 days for treatment, an initial 3 weeks stay for accommodation, medical care while there, a replacement VP shunt (which saved Lilys life so far ) is $50,000 to $80,000 in the US should she need it replaced, which is a possibility as it can malfunction. Since Lilys diagnosis a new trial called Brainchild03 which is Cart T Cells and is starting in March, price unknown at this time. This looks to be more promising than the drug ONC201 because Lilys own T Cells will recognise the cancer and keep it away. Depending on when we need to act we will be joining one of these two trials. The money raised will 100% be going to Lilys treatment. Her tumour is unpredictable and aggressive.

🌻 How to donate direct to Lilys fund.

PayPal: Martinwythe@live.co.uk

Bank Transfer:
Diane & Martin Wythe
Santander
09-01-29
34462676

Go fund me: (charge 2.9% of your donation in fees)
https://www.gofundme.com/f/help-lily-battle-brain-cancer

💛🌻 A massive heartfelt thank you from all of Lilys family and friends 🌻💛

I don’t expect you to donate, only if you wish to. All I would ask, is share please. Let others then share too. Let others then decide if this is something that they also can help with. We are all doing our bit, no matter how big or how small to help this family. To help Lily.

Thank you for reading and your support.

🌀M🌀

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